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| Seeking Skilled Care:
Introduction |
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| Complication Narratives: Placing Maternal
Careseeking in a Cultural Context |
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| Background |
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| Every birth and death occurs within
a specific social, cultural, and spiritual context. Contextual
factors contribute to the specific environments in which
births and deaths take place. Local contextual factors
often have more influence in delaying use of skilled care
than the "universal barriers" - recognition
of obstetric danger signs, cost, distance, and transport.
Research to design behavior change interventions to
improve maternal and newborn survival should explore
the local context. Understanding "contextual domains"
within the modern "medical culture" and traditional
cultures that relate to cultural and social norms, religious
and spiritual beliefs and gender relations can help
in designing locally appropriate and effective program
strategies.
The table below lists cultural domains to consider.
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| Contextual
and Cultural Factors that Can Inmpact Use of Skilled
Care |
| CHILDBIRTH-RELATED
BELIEFS, CUSTOMS, PREFERENCES and REQUIREMENTS
CULTURAL/SPIRITUAL
- belief in influence of "spirits"
on birth process and outcome
- disease etiology: "mismatch" of
origin or "realm" specific "obstetric"
conditions
- treatment efficacy: belief in effectiveness,
appropriateness of one system/treatment regimen
over another
- shame, embarrassment
- stigma, denial, "saving face/ crying
wolf"
- perception of overall concept of risk and
degree of personal risk
- recognition, perceived severity/urgency, attribution
of symptoms to other causes
- "triggers to action": specific set
of conditions at the point when awareness of
problem turns to action
- previous childbirth experiences
- temporal: perception of time and time-related
issues: meaning and value of concepts like hurry,
emergency
- caste, "race", linguistic, cultural
differences between patient and provider
- specific practices: (massage mother with oils,
Bangladesh)
RELIGIOUS
- specific practices:
- use of blood transfusions or other procedures
forbidden by religious law
- belief in power of prayer to heal/treat childbirth
problems
- fatalism
OTHER CULTURAL, TRADITIONAL, RELIGIOUS
AND SOCIAL NORMS, BELIEFS AND PRACTICES THAT INDIRECTLY
INFLUENCE USE OF SKILLED CARE
- caste or ritual pollution
- decision making by hierarchy of socio-familial
relationships: permission required to leave
home, seek skilled or other care, spend money
for obstetric costs in the absence of male head
of family
- social support/ kinship networks/ social networks
- respect and power/influence of elders, traditional
leaders and healers
- "power" relationships: respect/dominance/mystique
of Western medical practitioners
- abuse of power: harsh disrespectful treatment
of patients
- hierarchical relationships within the medical
system itself
- self-confidence, self-efficacy
ACTUAL BIRTH PRACTICES THAT INFLUENCE USE OF
SKILLED CARE
- birth location: home/hospital; specific location
in home or compound or
- imposed isolation during l&d
- birth attendant: skilled, TBA, other traditional,
family member, self, other
- room temperature: hot/cold
- ventilation: "winds"
- hygiene: traditional "bath" versus
aseptic techniques
- privacy: presence or absence of family and
social support
- modesty: dressed/undressed
- gender preference: (care providers or social
support providers)
- food/drink during labor, delivery
- labor and delivery position: lying, squatting,
sitting,
- use of substances (herbs, injections) to alter
labor or other phases of birth (oxytocin, misoprostol,
herbs)
- massage of abdomen or body during or after
labor "body language": touch/no touch;
physical distance/physical contact
- disposal of placenta
- immediate routine care of mother
- immediate routine care of newborn
- care of placenta/ ritual burial of placenta
- burial and other customs/ care required if
death of mother or newborn occur during l&d
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| Complication Narratives |
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| Various forms of "illness
narratives" can be used to provide details about
an illness and its sequelae, either complications (such
as obstetric or newborn complications interviews) or deaths
(verbal autopsies). "Near-miss inquiries" can
also be used to review the circumstances around a narrowly
avoided death in a facility and to identify service improvements
to avoid recurrence of such situations. Narratives utilize
anthropological techniques and traditions of oral narratives.
For rapid community-based development of maternal and
newborn survival behavior change interventions, a pared-down
approach can provide the information communities need
to develop local solutions. Such complication narratives
use a simple semi-structured format that allows participants
to tell the birth story to members of their own community,
in their own way and in their own words.
Complication narratives provide a retrospective look
into the timing of events of an obstetric complication
or emergency. The narratives are "verbal autopsies"
when the woman died as a result of the obstetric complication
or emergency. They can be conducted individually (narrative
monologue) or in groups (narrative dialogue) with the
woman who experienced the event, family members and
attendants.
Pregnant women are often not decision-makers regarding
careseeking during pregnancy, birth or the postpartum
period. Discussions that include all of the people involved
in the event provide a richer contextual background
and "cultural clues." The group format often
results in animated discussions that approximate interactions
between family and community members during obstetric
complications.
Even if it is difficult to identify them, it is important
to include only women and families who have experienced
a complication during the critical time period -- labor
and delivery or in the first week after birth
-- in the previous six months. People usually recall
complications more accurately when they have occurred
in the past six months. The critical life threatening
time during and after birth is when most maternal and
newborn deaths occur. For the purposes of community
complication narratives, women whose "complications"
occurred during early pregnancy should be screened out.
Although traumatic, early pregnancy complications do
not yield information about careseeking behaviors during
true obstetric emergencies. For example, a miscarriage
in early pregnancy is generally not life threatening.
Complication narratives should focus on retained placenta,
postpartum hemorrhage, prolonged labor/ruptured uterus,
eclampsia and sepsis. This deliberately excludes pre-eclampsia,
severe ante-partum hemorrhage and sepsis after unsafe
abortion.
The CHANGE Project oriented community interviewers
in both technique and subject matter. Their training
included the "three
delays" and "pathway to survival"
models of categorizing obstetric careseeking behaviors,
medical aspects of major obstetric complications, and
practical training in non-directive, open-ended interview
techniques - "active listening," when to request
clarification, how to probe at appropriate points and
how to redirect interviews that have gone off-track.
Research objectives of complication narratives:
- Provide a step-by-step analysis of the timing of
household events that occur during an obstetric complication
or emergency;
- Document the precise roles of individuals in the
household and community in deciding to seek care;
- Document the factors influence whether a skilled
care source is reached during an obstetric emergency;
and
- Define the role of skilled providers/facilities
in delays in quality care for obstetric emergencies.
Specific Objectives:
- Identify the steps in recognizing obstetric
complications that occurred in a family,
perceived causality of the complication and perceived
appropriate action/chain of care seeking actions for
the specific complication.
- Describe the contextual dimensions of careseeking
decision-making in obstetric emergencies
- who decides, how decisions are made, how long it
takes to decide, what the specific "triggers
to action" are, when a problem is seen as severe
enough to require action.
- Document the cultural and contextual factors behind
careseeking behavior/ care choices per specific complication
and differences between behavior patterns for each
complication.
- Explore the specific steps, timing and decision
makers involved in reaching care source(s)
during obstetric emergencies.
- Provide individual and household perspectives on
the events involved in receiving quality care
once skilled care source was reached.
- Understand skilled providers' perspectives on careseeking
events related to receipt of skilled care: timing,
technical choices and attitudinal responses of skilled
providers.
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| "Mapping"
Complication Narratives |
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In part because of the
semi-structured, uninterrupted style of narrative interview
methods and the level of detail elicited, analyzing
the results can be time-consuming. Mapping reduces the
amount of time needed and makes key findings more accessible.
Mapping creates a "visual pathway" that community
members and program planners can understand and use.
Maps illustrate the non-linear, back-and-forth or zigzag
careseeking movements and make it easy to visualize
the "detours" off the pathway to survival
and to calculate time spent on each step or detour. |
| "Visual Pathway" for
Mapping Complication Narratives |
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Key Element
of Obstetric Careseeking |
Recognize
Complication |
Decide |
Seek |
Reach |
Receive |
| Who |
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| Time Interval (how long it took) |
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| Actions Taken |
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| Reasons |
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| Results |
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Several mapping techniques can be used
[complication
narratives results grid; Nepal
map; Egypt
map]. The key elements of the obstetric careseeking
frameworks - recognizing, seeking, reaching and receiving
care - form the foundation for the complication maps.
Key elements include:
- the medical diagnosis (type of obstetric complication)
- a breakdown of the "pathway" to survival-
recognize, seek, reach, receive
- the time each careseeking component required
- the approximate time from onset of labor to receipt
of appropriate treatment
- the number of providers/care sights consulted, and
sequence of consultations
- reasons for seeking care from each care source
- delivery location
- birth outcome
- cost as reported by the respondents
If possible, check the family narrative with the skilled
providers involved and hospital records. |
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| Findings: "Detours
and Delays on the Pathway to Survival |
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| Complication narratives in many rural
settings (Guinea, Kenya and Nepal) where maternal mortality
is high confirm the relevance of the "universal barriers"
-- recognition of danger signs, cost, distance and transport
-- to use of skilled care. They have also provided setting-specific
detail on many local contextual factors that influence
careseeking.
For example, in remote rural Guinea, CHANGE Project
complication narratives showed that many women chose
local traditional birth attendant (TBA) care in spite
of monetary fines imposed by local health committees
to encourage use of skilled providers. Because of differences
in emergency careseeking behaviors between locations
both near and far from the regional health facility
separate behavior change strategies were developed for
each.
CHANGE Project complication narratives in Western Kenya
documented multiple careseeking "detours."
Some women with obstetric complications were taken first
to indigenous religious groups for prayer healing. These
groups strongly advised against use of Western medical
care so several women were kept there for days or weeks
before they sought skilled care. For other women, confusion
about the qualifications and capabilities of local "doctors"
resulted in careseeking from sources other than legitimate
professional skilled care providers. Traditional birth
attendants (TBAs) were often "caught in the crossfire"
during lengthy family disagreements in the household
about where and when to move a woman with complications
to a skilled provider for care.
Careseeking detours and delays occasionally persisted
beyond labor and delivery, extending well into the postpartum
period. Several women who had reached skilled care for
birth were not able to receive skilled care in the postpartum
period.
Family members of women who died provided moving and
eloquent "testimonials" in which they strongly
urged other families not to make the same careseeking
mistakes they had made.
Complication narratives in remote rural Nepal illustrated
factors such as ritual isolation of women during childbirth,
often in cowsheds. They also found that families relied
on male traditional healers to determine the origin
of obstetric complications (thought to be spiritually-induced)
and deliver treatment by "blowing" on the
woman to counteract the spiritual influences.
The Nepal narratives documented "laj", a
widespread feeling of shame that limited women's ability
to inform others or ask for help even in extreme obstetric
emergencies. Cultural fatalism resulted in a "wait-and-see"
approach to careseeking and acceptance of maternal death
as an outcome of complications. In Nepal, these contextual
factors have been incorporated into a national multi-media
campaign to improve maternal survival and enhance more
conventional activities to increase awareness of obstetric
danger signs.
Documenting these specific careseeking "detours"
is essential to "re-route" women with complications
back onto the pathway to survival. |
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| Problems, Pitfalls
and Lessons learned |
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| As described in Seeking
Skilled Care, it was often difficult to locate women
or families of women who experienced a true obstetric
emergency in the previous six months. Community members
had to identify many of the women who delivered in facilities
as well as women who gave birth at home. In Kenya, the
assistance of district public health officers, nurses
and midwives, TBAs, chiefs, religious leaders, village
elders, community members and even "quack" doctors
residing in the study areas was required.
For complication narratives, the CHANGE Project found
that often the most useful information came from discussions
that began by simply switching on the recorder, and
asking the opening question: "Let's start when
(the woman) went into labor. Tell me what happened...".
The CHANGE Project recommends that any project working
to improve maternal and newborn survival use complications
narratives, even if only one research technique can
be used due to time or resource constraints. Complication
narratives provide the richest and most detailed information
on careseeking practices. |
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| References |
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| Howard-Grabman, L. and G Snetro. How
to Mobilize Communities for Health and Social Change Save
the Children Federation JHU/PCS 4. Baltimore, MD 2003
Kureshy, N. Review of Select Family and Community Practices
for Safe Motherhood unpublished manuscript WHO Geneva/
MotherCare 2000
Loza, S, et al. The original research from Egypt **
HMHC Cairo 1997
Manandhar, M. Obstetric Health Perspectives of Magar
and Tharu Communities: A Social Research Report to Inform
the Nepal Safer Motherhood Project's IEC Strategy. HMGN
Nepal Safe Motherhood Program/ DFID/ Options, Kathmandu,
March 2000.
Moore, M, Copeland, R, Chege, I, Pido, D and M Griffiths.
A Behavior Change Approach to Investigating Factors
Influencing Women's Use of Skilled Care in Homa Bay
District, Kenya, The CHANGE Project, Academy for Educational
Development/The Manoff Group. Washington, DC December
2002
Moore, M and M Manandhar. Detours and Delays on the
Pathway to Maternal Survival. Unpublished draft manuscript,
Washington, DC July 2003
MotherCare. Behavioral Dimensions of Maternal Health
and Survival: A consultative Forum. MotherCare, CHANGE
Project, World Health Organization MotherCare Matters
9(3) September 2000
Nachbar, N, C Blume and A Parekh. Assessing safe Motherhood
in the Community: A Guide to Formative Research. MotherCare
JSI. Arlington, VA September 1998
The Nepal Maternal and Neonatal Health Program SUMATA
Initiative (MNH/Nepal). The Communication Initiative,
www.comminit.com
March 2003
Sibley, Lynn et al. Home Based Lifesaving Skills (HBLSS):
At-a-Glance. NGO Networks. Washington, DC March 2003
Thaddeus, S and D Maine. Too Far to Walk: Maternal
Mortality in Context. Social Science and Medicine 38
(80 1091-1110 1994
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